LOL, LOL.......
I just realized why a lot of those does at the Nationals didn't look so hot, for a change. See, I've seen maybe half of them (or their herds, at least) before, and shown against them. I didn't do well, and I couldn't understand why my does were so lean in comparison to theirs, how they could keep flesh on their does if they were milking like mine do (which is well- I cull does who don't produce according to my standards, perfect udder or no).
I would go to a show, and they'd commnce milking their does some 14-16 hours before the show. (Normally, a dairy animal gets milked twice a day, 12 hours between milkings). Well, I'd milk the very stressed does or those who had gone off their feed (due to the stress of the show and new surroundings) 14 hours beforehand, but most of them got milked about 12 hours before. Its hard, because you don't know how long the judge will take in judging the animals. Some are pretty danged fast and others take a very long time and the show stretches into the night. I don't want to risk my animals being in pain or serious discomfort...so 12 hours is usually enough, by the scheduled time, because it's generally longer than that before they go into the showring.
Anyway, other exhibitors don't usually do that. I was told flatly that I would lose if I didn't have 15+ hours of milk in my doe's udders. I didn't lose, they placed about where they should have.... Sometimes the other does are leaking a lot of milk or standing hunched up and in pain. Most of them don't leak. Their teats have had a special "stop-leak" glue applied to the orifices. Sometimes my does leak, too. They're used to dam raising their kids (others generally bottle feed) and they aren't really used to having even 12 hours of milk at one time, it's sometimes too much for what they're producing. I have been known to milk them out a little before the show because they are TOO FULL...and I don't want my does to be in pain.
Anyway...I couldn't figure out why these other does, who I've stood behind in the local shows before, looked so...ordinary...at the biggest show they could go to!
I woke up laughing.....because I suddenly realized why.
The National Show requires what is known as a milk out. Everyone has to milk out their does at the same time before the show. It's either 12 or 14 hours beforehand...and there are people who come along and check that every doe has been thoroughly milked out....completely. There was VERY little over-uddering at the National, a whole lot less than I've seen locally. Most of the does who were overfull were very young, their udders weren't used to holding a lot of milk yet.
All this time, I've been unfairly comparing my productive dairy goats to these overfed show animals who don't even begin to produce what mine do...and it never hit home until now....LOL.....I have spent I don't know how much money buying expensive, registered stock at high prices from these people....(and then been dismayed when many of the does didn't produce a whoel lot)...all the while bemoaning what I had...LOL, LOL. Oh, the irony....
email
Friday, July 29, 2005
Tuesday, July 26, 2005
I just got back from the National ADGA Dairy Goat Show. I am thinking (without any sound evidence to the fact except for high probability) that it is the biggest, most complete (inasmuch as the best specimens are represented) goat show in the world. And this year, it was only an hour away!! What an opportunity! My only regret at this point is that I didn't have my act together enough to have attended as an exhibitor, rather than as a spectator.
By pure coincidence, the only day when I could conveniently attend without it being a pain in the a$$ also happened to be the day of the Alpine show (the breed I raise)! Sweet. This is the first time I've been to a National; I've dreamed about it for years...(yes, even as a spectator).
So- my persective on the long awaited event:
By pure coincidence, the only day when I could conveniently attend without it being a pain in the a$$ also happened to be the day of the Alpine show (the breed I raise)! Sweet. This is the first time I've been to a National; I've dreamed about it for years...(yes, even as a spectator).
So- my persective on the long awaited event:
- The event was not as intimidating as I had thought it would be
- Some of the people I'd wanted to meet were...less nice than I had imagined.
- Others- total strangers I'd never heard of, were extremely nice and friendly
- There were herds that I'd had a LOT of respect (even awe) for, and after seeing the animals in the flesh, and in comparison with other herds...in some cases I flat out lost the respect...in most cases the awe simmered down to interest or a footnote. In retrospect, a lot of the awe was due to hype or publicity or a huge, overinflated ego on the part of the breeder.
- There were herds that I hadn't paid much attention to...and wrongly so. I'll be keeping a closer eye on them in the future.
- And then there were the classics: herds that I knew I respected, and that I retained respect for.
- One thing that also struck me: many of the does were beautifully bodied but didn't seem too productive!! A National Show Animal ought to have more than 2-3 quarts in her udder...epsecially a mature doe.... In a lot of the cases, I can honestly say that my does produce better.
- The foreudders were not of the caliber of excellence that I had been (unrealistically) holding my does to.
- Feet!!!! Breed for better feet, people! And for better legs, too.
- Some of the does, including mature does, were small! I mean, really small. I won't be as obsessive about this (though it's still important to me not to own runts!)
- And...I hate to say this...but I retain my loathing for the falsehood of posing and concealing faults. One doe placed high in her class for a nice topline, when in fact, she has a roached loin. Her handler had posed her well enough to straighten her back out when she was standing. As a handler, this is our job...to make our animals look good...but the judge should look out for this when the doe is walking. But with some 40-50 does in a class, something is bound to get overlooked...
- Last but not least, I came away from the event with a much greater respect and appreciation for my own does. I saw only one doe that I coveted. There were does who were nicer than mine, but I didn't see anything that made me want to throw mine away and buy all new stock. In fact, I felt a little bit...smug. My does are good. They wouldn't have placed at the top of the line...but neither would they be at the end. My breeding program is headed in more or less the right direction and I'm extremely happy with what I have. :-)
Saturday, July 09, 2005
Reading: A Species for Eternity
This is a neat book. Of course, I'm biased...because this tome about American maturalists and botanists features my ancestor, John Bartram, prominently. This guy was just flat out cool. He was a Quaker, but eventually managed to get himself kicked out of the meetinghouse (or whatever they call it) since he couldn't believe that Jesus was divine, and espoused the (then) modern theories of Newton. He found at least as much joy and fascination in plants as I do, and shipped 150+ new species to England, to be classified (classfication has just been introduced by Linnaeus...the two were contemporaries and correspondants). He became a very competent botanist despite that fact that he had a very limited formal education and didn't know Latin (a disadvantage in the circles he moved in). He opposed slavery and set a slave free who had been born into the family. On top of all this, the man was a pretty accomplished self taught artist. IIRC, so was his son, William. I haven't gotten to that part yet.
The book is interesting in its own right, though. I never really realized how much trading of plant material took place between America and England, France, etc, especially at that time. It kind of makes me sad though...becuase these men, from all different backgrounds, countries, religious persuasions, were drawn together in the pursuit of science and were very generous with one another towards that end both in terms of time, expense, and trouble (John Batram went out for weeks or months at a time on plant collecting expeditions, braving wild animals, hostile Indians, and risking his own poor health). He did all that while raising a family with 7 kids and managing his own farm!
And now....if a layman wanted to do something like this, it'd be so hard. Just consider the regulations and restrictions on plant material and seeds! I understand that there are reasons for that....but what resources and potential are we sacrificing by doing this? Would we see such brotherly cooperation between countries, across political lines, regarding plants never before identified or seen by a white man's eye? I can't help feeling disappointed by the way things are today.
This is a neat book. Of course, I'm biased...because this tome about American maturalists and botanists features my ancestor, John Bartram, prominently. This guy was just flat out cool. He was a Quaker, but eventually managed to get himself kicked out of the meetinghouse (or whatever they call it) since he couldn't believe that Jesus was divine, and espoused the (then) modern theories of Newton. He found at least as much joy and fascination in plants as I do, and shipped 150+ new species to England, to be classified (classfication has just been introduced by Linnaeus...the two were contemporaries and correspondants). He became a very competent botanist despite that fact that he had a very limited formal education and didn't know Latin (a disadvantage in the circles he moved in). He opposed slavery and set a slave free who had been born into the family. On top of all this, the man was a pretty accomplished self taught artist. IIRC, so was his son, William. I haven't gotten to that part yet.
The book is interesting in its own right, though. I never really realized how much trading of plant material took place between America and England, France, etc, especially at that time. It kind of makes me sad though...becuase these men, from all different backgrounds, countries, religious persuasions, were drawn together in the pursuit of science and were very generous with one another towards that end both in terms of time, expense, and trouble (John Batram went out for weeks or months at a time on plant collecting expeditions, braving wild animals, hostile Indians, and risking his own poor health). He did all that while raising a family with 7 kids and managing his own farm!
And now....if a layman wanted to do something like this, it'd be so hard. Just consider the regulations and restrictions on plant material and seeds! I understand that there are reasons for that....but what resources and potential are we sacrificing by doing this? Would we see such brotherly cooperation between countries, across political lines, regarding plants never before identified or seen by a white man's eye? I can't help feeling disappointed by the way things are today.
Friday, July 08, 2005
Aspie relationships revisited
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I'm still of the opinion that an AS + NT relationship is likely to be fraught with difficulty without extensive, ongoing work and acceptance by both parties involved. It could be (fairly) said that this will be true of any relationship, and I will grant that. However, I think that this sort of mating has even more hardship than the usual and both parties are less equipped to adequately understand their mate than would usually be the case.
************moving along then****************
An AS + AS relationship:
Communication and understanding are less of a problem.
Trying to survive and hold down jobs can add stress.
If sensory issues conflict, it can cause trouble. For example, one party craves scents while the other is absolutely repulsed by them.
There is a tendency to assume that the other party knows what you are thinking...Oops!
More tolerance of touch aversions, tactile sensitivies, and overload.
Emotions can spike easily on both sides.
Arguments can result in cold silent wars until one or both parties relent.
Natural solitude can easily be mistaken for sulking.
If special interests conflict or compete.....uh.....hmmm.
Overall though, I have found that there is a lot of mutual joy and happiness and security in knowing that there is someone else like you who understands and accepts you because they are that way too.
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I'm still of the opinion that an AS + NT relationship is likely to be fraught with difficulty without extensive, ongoing work and acceptance by both parties involved. It could be (fairly) said that this will be true of any relationship, and I will grant that. However, I think that this sort of mating has even more hardship than the usual and both parties are less equipped to adequately understand their mate than would usually be the case.
************moving along then****************
An AS + AS relationship:
Communication and understanding are less of a problem.
Trying to survive and hold down jobs can add stress.
If sensory issues conflict, it can cause trouble. For example, one party craves scents while the other is absolutely repulsed by them.
There is a tendency to assume that the other party knows what you are thinking...Oops!
More tolerance of touch aversions, tactile sensitivies, and overload.
Emotions can spike easily on both sides.
Arguments can result in cold silent wars until one or both parties relent.
Natural solitude can easily be mistaken for sulking.
If special interests conflict or compete.....uh.....hmmm.
Overall though, I have found that there is a lot of mutual joy and happiness and security in knowing that there is someone else like you who understands and accepts you because they are that way too.
Saturday, July 02, 2005
Rodeo Days, Woo-Hoo...
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Ok, as promised, I review the Rodeo Days Weekend (last weekend, I am still reeling from the 7-4 madness this week).
First of all, I didn't go to the Rodeo. I stayed at the store and dutifully cooked more deli food and fried chicken than I care to think about. My customers were many, hurried (they had to get to the rodeo) and ate lots of deep fried food. Nearly all of them were very excited and hyped up about the rodeo. The girls who had to stay at work were bummed...they wanted to go. One was able to leave early so she got to go after all. Secondly, I could care less about the rodeo. I had absolutely NO interest in going.
It just isn't my thing, and I had a hard time explaining why. Seeing grown men hop off horses and wrestle a small calf to the ground 10-15 times in a row is, well, boring (along with being a pathetically misguided show of machoismo). I can see no sex appeal there. I can admire barrel racing- it involves skill and quite a bit of work, and it doesn't hurt, scare, or traumatize any animals. let's not even get into what a low opinion I have on goat roping.... As for bareback riding and bull riding: in all honesty, why would a girl find this sexy? The poor guys look like limp rag dolls tied to the comparatively gracefully twisting and struggling chunk of muscle beneath them. Every time they land hard, I picture what it must feel like for their balls to get smashed like that, and I wince. I can't help wondering if it affects their performance.....and I'm sure that it must cause damage... Why would any sane girl *want* a guy who does that habitually and publicly?
So when they asked me why I didn't want to go and had no enthusiasm, my response was that, IMHO, the rodeo is nothing more than a (tamed down) modern day version of the Roman colosseum. (The same would go for wrestling, boxing, football, and other contact sports).
So....Starurday night, the second to last bullrider was a 17 year old kid. His bull hadn't been ridden much before, and it was mean. To make a long story short, the kid lost his balance, and his head went forward while the bull's head went back. Someone said that the bull's horn gored his skull, the paper merely stated that the bull's head hit his head and gave him a concussion. At any rate, he fell off, and then the bull stomped on/kicked his head and chest. He had protective chest gear on but no helmet (got to leave room for that fancy hat). He died in the helicopter en route to the hospital. This is our entertainment. People paid to see this.
I rest my case.
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Ok, as promised, I review the Rodeo Days Weekend (last weekend, I am still reeling from the 7-4 madness this week).
First of all, I didn't go to the Rodeo. I stayed at the store and dutifully cooked more deli food and fried chicken than I care to think about. My customers were many, hurried (they had to get to the rodeo) and ate lots of deep fried food. Nearly all of them were very excited and hyped up about the rodeo. The girls who had to stay at work were bummed...they wanted to go. One was able to leave early so she got to go after all. Secondly, I could care less about the rodeo. I had absolutely NO interest in going.
It just isn't my thing, and I had a hard time explaining why. Seeing grown men hop off horses and wrestle a small calf to the ground 10-15 times in a row is, well, boring (along with being a pathetically misguided show of machoismo). I can see no sex appeal there. I can admire barrel racing- it involves skill and quite a bit of work, and it doesn't hurt, scare, or traumatize any animals. let's not even get into what a low opinion I have on goat roping.... As for bareback riding and bull riding: in all honesty, why would a girl find this sexy? The poor guys look like limp rag dolls tied to the comparatively gracefully twisting and struggling chunk of muscle beneath them. Every time they land hard, I picture what it must feel like for their balls to get smashed like that, and I wince. I can't help wondering if it affects their performance.....and I'm sure that it must cause damage... Why would any sane girl *want* a guy who does that habitually and publicly?
So when they asked me why I didn't want to go and had no enthusiasm, my response was that, IMHO, the rodeo is nothing more than a (tamed down) modern day version of the Roman colosseum. (The same would go for wrestling, boxing, football, and other contact sports).
So....Starurday night, the second to last bullrider was a 17 year old kid. His bull hadn't been ridden much before, and it was mean. To make a long story short, the kid lost his balance, and his head went forward while the bull's head went back. Someone said that the bull's horn gored his skull, the paper merely stated that the bull's head hit his head and gave him a concussion. At any rate, he fell off, and then the bull stomped on/kicked his head and chest. He had protective chest gear on but no helmet (got to leave room for that fancy hat). He died in the helicopter en route to the hospital. This is our entertainment. People paid to see this.
I rest my case.
Tuesday, June 28, 2005
Aspie Relationships (maybe autistic relationships in general)
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Anyone who is autistic or has ever been in a relationship with an aspie knows how challenging (understatement!!) such things can be for us. I think there are several areas of difficulty...
Most of us wind up in an NT+AS match at least once. I tend to think that while not impossible, these matings are inclined to be extremely hard to establish and maintain with both parties happy. When I say happy, I don't mean euphoric-forever-madly-in-love. Just, happy-I'm-glad-we-did-this-and-we-like-each-other-still.
Why?
Partly because the NT has to adjust to us, and they're disused to doing so. Aspies are well aquainted with having to adjust to NT's and accede to them at times. It's the story of our life, after all... Herein lies another area of conflict and unhappiness: the aspie is *sick* of having to play head games and make concessions all day long, their entire life long. We want to be able to relax and let our hair down for a change, to be liked for who we really are. If the NT only likes us as long as we can maintain the "NT masquerade", it's not really us that they love; it's the NT mask that we're wearing (at an enormous personal price). It can't be maintained 24/7 for months at a time. The real person will show through when the effort of keeping up the facade proves too stressful or when the NT earns our trust enough that we start to let them see a little of our real selves.
A number of NT's that I've talked with online mention feeling dismayed and somewhat betrayed, or duped, when they find out that their aspie lover is more than just a little eccentric. No folks, we are very eccentric, and we do have areas of hardship in dealing with the world at large, just as you have faults of your own. Asking us to retain the mask ALL the time is....not love. Sorry. :-/
We're not perfect...not by a long shot. Speaking for myself mostly, I've felt isolated from the world for most of my life (uh, maybe all of it). It's like an invisible wall seperating me from other people. I can observe them, but I'm a foreigner. Not theirs. I routinely feel lonely...lonely in a way that I suspect normal people rarely do...like the deepest ocean, almost bottomless and with no islands in sight anywhere, not even a bird. This has been more or less the norm for me, and there are very, very few people who have been able to pierce that loneliness or to walk through my wall more than momentarily (at least I have plenty of tiem to think and mull things over). Can you imagine feeling deeply, desperately lonely, like a black void crying out in agony, while you are in the midst of lovemaking and your mate is having a great old time? I can hardly think of anything worse...but I've experienced that more times than I care to count, and far more often than it's been otherwise, unfortunately. It isn't about physical satisfaction, it's about feeling that someone knows the real you.
Library is shutting down so I'll resume this at home!!
________________________________________________________________
Anyone who is autistic or has ever been in a relationship with an aspie knows how challenging (understatement!!) such things can be for us. I think there are several areas of difficulty...
Most of us wind up in an NT+AS match at least once. I tend to think that while not impossible, these matings are inclined to be extremely hard to establish and maintain with both parties happy. When I say happy, I don't mean euphoric-forever-madly-in-love. Just, happy-I'm-glad-we-did-this-and-we-like-each-other-still.
Why?
Partly because the NT has to adjust to us, and they're disused to doing so. Aspies are well aquainted with having to adjust to NT's and accede to them at times. It's the story of our life, after all... Herein lies another area of conflict and unhappiness: the aspie is *sick* of having to play head games and make concessions all day long, their entire life long. We want to be able to relax and let our hair down for a change, to be liked for who we really are. If the NT only likes us as long as we can maintain the "NT masquerade", it's not really us that they love; it's the NT mask that we're wearing (at an enormous personal price). It can't be maintained 24/7 for months at a time. The real person will show through when the effort of keeping up the facade proves too stressful or when the NT earns our trust enough that we start to let them see a little of our real selves.
A number of NT's that I've talked with online mention feeling dismayed and somewhat betrayed, or duped, when they find out that their aspie lover is more than just a little eccentric. No folks, we are very eccentric, and we do have areas of hardship in dealing with the world at large, just as you have faults of your own. Asking us to retain the mask ALL the time is....not love. Sorry. :-/
We're not perfect...not by a long shot. Speaking for myself mostly, I've felt isolated from the world for most of my life (uh, maybe all of it). It's like an invisible wall seperating me from other people. I can observe them, but I'm a foreigner. Not theirs. I routinely feel lonely...lonely in a way that I suspect normal people rarely do...like the deepest ocean, almost bottomless and with no islands in sight anywhere, not even a bird. This has been more or less the norm for me, and there are very, very few people who have been able to pierce that loneliness or to walk through my wall more than momentarily (at least I have plenty of tiem to think and mull things over). Can you imagine feeling deeply, desperately lonely, like a black void crying out in agony, while you are in the midst of lovemaking and your mate is having a great old time? I can hardly think of anything worse...but I've experienced that more times than I care to count, and far more often than it's been otherwise, unfortunately. It isn't about physical satisfaction, it's about feeling that someone knows the real you.
Library is shutting down so I'll resume this at home!!
Sunday, June 26, 2005
Sensory Preception and Autism
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I found a site which actually contains some very accurate,hit-the-nail-on-the-head information about autism. Scroll down and take a look at the spider-type diagrams, especially the second one. I have experienced most of those things. This is a fascinating article...
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Sensory Overload at the Workplace....
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The last three days have been just *insane* at my job. It's rodeo weekend, with a large rodeo and carnival just 5-6 miles away in our neigboring town. If you haven't encountered my blog before, I work in the deli/bakery of a gorcery store. At first, I ran from the customers and could hardly function, but I adjusted. Now I'm a very competent worker. Anyway, I've had to work all three days!! We have been deluged with insistent people (many from out of town, therefore they have no reason to be especially nice to us)for hours at a time. We've also been shorthanded with our workers. This is a bad, bad combination for me....
I've been rushing around trying to help all the customers (frequently there is a crowd of them), trying to cook or prepare enough food for them (but they buy it just as fast as we make it!!) and it is a multi-tasking nightmare.
The effect has been:
-->Sometimes I can't seem to hear them. There is so much noise overall, I can't sort their voices out.
-->When they smell bad (perfumy, usually) it is affecting me worse and I am more likely to say something out loud to my coworkers. Today, I waited on a woman, and as she left, I turned to my manager and said: "sugary flowers!" and made a face. It was what the lady smelled (stunk!) like. Smells really, really bug me.
-->People say things to me and I hear words, but they don't translate into meaning. I hear only the words, and I know the person is trying to communicate with me, so I look at them expectantly, but probably quizzically. Sometimes I have to ask another time or two or say the words back before it decodes into something useful to act on.
-->Anxiety attacks, oh lovely.....
-->and my co-worker (one in particular) gets very, very impatient and somewhat bitchy with me, espcially if I give her the blank lok because I didn't understand. I am working just as hard, at least as hard, as she is, and I invariably end up stuck with most of the customers as well, so I don't understand the bad attitude.
-->It can be hard for me to prioritize what needs to be done first when there are a lot of things that all seem to need immediate attention. Three customers, the phone is ringing, the intercom is calling us, the buzzers and timers are going off, there is a chicken order to fill, the hot case is empty and needs food in it.... Usually I wait on the customers so they'll go away. Sometimes (groan) they keep coming! After that, the most annying stimulus gets attended to first (timer shrieking insistently).
-->Oh, yeah. Concentration. It becomes very hard for me to focus when there is so much going on. I begin to feel like I'm drowning in noise and demands and can't cope. I feel all scattered inside....
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I'm really glad this was the last day of rodeo weekend (more on this morbid subject tommorow).
_______________________________________________________________
I found a site which actually contains some very accurate,hit-the-nail-on-the-head information about autism. Scroll down and take a look at the spider-type diagrams, especially the second one. I have experienced most of those things. This is a fascinating article...
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Sensory Overload at the Workplace....
_______________________________________________
The last three days have been just *insane* at my job. It's rodeo weekend, with a large rodeo and carnival just 5-6 miles away in our neigboring town. If you haven't encountered my blog before, I work in the deli/bakery of a gorcery store. At first, I ran from the customers and could hardly function, but I adjusted. Now I'm a very competent worker. Anyway, I've had to work all three days!! We have been deluged with insistent people (many from out of town, therefore they have no reason to be especially nice to us)for hours at a time. We've also been shorthanded with our workers. This is a bad, bad combination for me....
I've been rushing around trying to help all the customers (frequently there is a crowd of them), trying to cook or prepare enough food for them (but they buy it just as fast as we make it!!) and it is a multi-tasking nightmare.
The effect has been:
-->Sometimes I can't seem to hear them. There is so much noise overall, I can't sort their voices out.
-->When they smell bad (perfumy, usually) it is affecting me worse and I am more likely to say something out loud to my coworkers. Today, I waited on a woman, and as she left, I turned to my manager and said: "sugary flowers!" and made a face. It was what the lady smelled (stunk!) like. Smells really, really bug me.
-->People say things to me and I hear words, but they don't translate into meaning. I hear only the words, and I know the person is trying to communicate with me, so I look at them expectantly, but probably quizzically. Sometimes I have to ask another time or two or say the words back before it decodes into something useful to act on.
-->Anxiety attacks, oh lovely.....
-->and my co-worker (one in particular) gets very, very impatient and somewhat bitchy with me, espcially if I give her the blank lok because I didn't understand. I am working just as hard, at least as hard, as she is, and I invariably end up stuck with most of the customers as well, so I don't understand the bad attitude.
-->It can be hard for me to prioritize what needs to be done first when there are a lot of things that all seem to need immediate attention. Three customers, the phone is ringing, the intercom is calling us, the buzzers and timers are going off, there is a chicken order to fill, the hot case is empty and needs food in it.... Usually I wait on the customers so they'll go away. Sometimes (groan) they keep coming! After that, the most annying stimulus gets attended to first (timer shrieking insistently).
-->Oh, yeah. Concentration. It becomes very hard for me to focus when there is so much going on. I begin to feel like I'm drowning in noise and demands and can't cope. I feel all scattered inside....
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I'm really glad this was the last day of rodeo weekend (more on this morbid subject tommorow).
Thursday, June 23, 2005
OK, I am getting sick and tired of hearing this statement:
"Most autistics also have mental retardation."
Supposedly, 75% of us are retarded! Most of my personal aquaintances who are autistic haven't struck me as retarded at all. Some of them have been non-verbal. Others stimmed a lot or were otherwise very obviously autistic. Many of them were aspie (Asperger's), like me, but not always. At least three of them were not aspie. I have only met one individual who did seem a bit slow, and he was A: drugged up with all sorts of meds and B: had a primary dx of Tourettes, with a secondary of PDD. The majority of those that I meet are not retarded.
Of course, several of the peopel I've met also haven't been formally diagnosed. We made it all the way into adulthood before we found out, and suddenly the struggles and questions we'd had made sense and the pieces fell into place. Who exactly are they counting when they come up with these staistics, because I haven't been counted? Perhaps they only count those of us who are on SSI or SSDI; that's not fair.....
Additionally: if most of us are retarded, then explain this one to me: I applied for an autism research study. However, the study had a window of I.Q. range, anywhere between 80-120. In other words, if you are autistic and have an I.Q. of over 120, you cannot apply, too smart. Their study automatically sieves out the higher end of autism that *should* be studied and given more credit and recognition. I can see that they might consider 150 a bit high...but 120? I mean, 120 just does not seem that phenomenal to me. In fact, it seems a bit average.
Is there an agenda to discredit the fact that many of us are quite bright and have managed to cope reasonably well in the world?
"Most autistics also have mental retardation."
Supposedly, 75% of us are retarded! Most of my personal aquaintances who are autistic haven't struck me as retarded at all. Some of them have been non-verbal. Others stimmed a lot or were otherwise very obviously autistic. Many of them were aspie (Asperger's), like me, but not always. At least three of them were not aspie. I have only met one individual who did seem a bit slow, and he was A: drugged up with all sorts of meds and B: had a primary dx of Tourettes, with a secondary of PDD. The majority of those that I meet are not retarded.
Of course, several of the peopel I've met also haven't been formally diagnosed. We made it all the way into adulthood before we found out, and suddenly the struggles and questions we'd had made sense and the pieces fell into place. Who exactly are they counting when they come up with these staistics, because I haven't been counted? Perhaps they only count those of us who are on SSI or SSDI; that's not fair.....
Additionally: if most of us are retarded, then explain this one to me: I applied for an autism research study. However, the study had a window of I.Q. range, anywhere between 80-120. In other words, if you are autistic and have an I.Q. of over 120, you cannot apply, too smart. Their study automatically sieves out the higher end of autism that *should* be studied and given more credit and recognition. I can see that they might consider 150 a bit high...but 120? I mean, 120 just does not seem that phenomenal to me. In fact, it seems a bit average.
Is there an agenda to discredit the fact that many of us are quite bright and have managed to cope reasonably well in the world?
Monday, June 20, 2005
These lyrics from 'Losing My Religion' ( yeah, that too), (by R.E.M.) very aptly describe what it's been like for me, as an autistic playing the field, searching with all my heart for a soulmate.
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try........
Trying to keep an eye on you
Like a hurt lost and blinded fool, fool
Oh no, I’ve said too much
---------------------------------------------------------------------
I've been the jester, giving everyone else their jollies and giggles...
Taking the brunt of their ridicule and their burning scorn...
Swallowing the bitterness time and again...
Falling down over and over, trying to stand, getting knocked back down...
Fumbling, saying all the wrong things
and not the words that crowded and choked my heart
Mistaking their amusement and pity and politeness for love
or even for friendship
when I meant nothing at all....
just a pawn to eventually dispose of...... :-(
What is it with people,
that when they see something with a pure and innocent heart
or something weaker or more vulnerable than themselves,
they automatically despise it?
Mean boys never really progress past pulling wings and legs off of insects;
they only change their focus to other poeple,
and learn how to make themselves seem oh-so-holy and blameless.....
I despise them!!!
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try........
Trying to keep an eye on you
Like a hurt lost and blinded fool, fool
Oh no, I’ve said too much
---------------------------------------------------------------------
I've been the jester, giving everyone else their jollies and giggles...
Taking the brunt of their ridicule and their burning scorn...
Swallowing the bitterness time and again...
Falling down over and over, trying to stand, getting knocked back down...
Fumbling, saying all the wrong things
and not the words that crowded and choked my heart
Mistaking their amusement and pity and politeness for love
or even for friendship
when I meant nothing at all....
just a pawn to eventually dispose of...... :-(
What is it with people,
that when they see something with a pure and innocent heart
or something weaker or more vulnerable than themselves,
they automatically despise it?
Mean boys never really progress past pulling wings and legs off of insects;
they only change their focus to other poeple,
and learn how to make themselves seem oh-so-holy and blameless.....
I despise them!!!
Saturday, June 11, 2005
Here is a really wonderful excerpt from Temple Grandin's new book, _Animals_in_Translation_. Read it here!!
I agree with her.
I agree with her.
Saturday, June 04, 2005
An Afterthought on Non-Existent Amish Auties and Vaccination
__________________________________________________________________
If a clear link between vaccines and autism is suspected, the way to go about it is to investigate ALL autistics who were not vaccinated, and to compare the autism rate among non-vaccinating parents to that of the general population. There are MANY parents who do not vaccinate their children. To draw such conclusions requires a wider genetic base with fewer interfering factors (such as culture, religious objection to medical advice, general ignorance of autism, and isolationism, as well as the narrow gene pool).
Not all of my children are vaccinated. One of the ones who isn't seems very aspie to me. My dad seems aspie. It's commonly accepted in my family that eccentricity is common among us. I am convinced taht it is genetic and vaccinesmay or may not excaberate the situation. I do know that the aspie physiology (based on hearsay and compaisons with other aspies) seems to be very sensitive to some substances and stimuli and hardly affected by others. It does make sense that vaccines might make it worse than it would otherwise have been.
__________________________________________________________________
If a clear link between vaccines and autism is suspected, the way to go about it is to investigate ALL autistics who were not vaccinated, and to compare the autism rate among non-vaccinating parents to that of the general population. There are MANY parents who do not vaccinate their children. To draw such conclusions requires a wider genetic base with fewer interfering factors (such as culture, religious objection to medical advice, general ignorance of autism, and isolationism, as well as the narrow gene pool).
Not all of my children are vaccinated. One of the ones who isn't seems very aspie to me. My dad seems aspie. It's commonly accepted in my family that eccentricity is common among us. I am convinced taht it is genetic and vaccinesmay or may not excaberate the situation. I do know that the aspie physiology (based on hearsay and compaisons with other aspies) seems to be very sensitive to some substances and stimuli and hardly affected by others. It does make sense that vaccines might make it worse than it would otherwise have been.
Friday, June 03, 2005
No Amish Autistics!!!! It's a Conspiracy!!!
_________________________________________________________
At this point, I suppose I should link to the relevant articles:
here's one and here....is another.
Ok, here's my spiel on the matter: Dan Olmstead desperately needs to research animal breeding (heck, plant breeding would work too) before he starts jumping to conclusions. It is true that the Amish live a relatively simple and less industrialized lifestyle than most of us (although we tend to romanticize and exaggerate this fact: the Amish actually do have washing machines in many cases....just not your standard on the grid machine). I'm sure that quite a few of them also don't go to doctors unless absolutely necessary. Their life is far less inundated with the sort of noise and chaos that drives an aspie to their wit's end. The schools are smaller and less overwhelming. Among these facts: The Amish generally don't vaccinate their children. This is one of many aspects of the Amish culture.
Apparently there are far less reported cases of autism in the Amish community. I suspect that the aspies function better there than they do in our modern day life and probably go undetected....if they are there. Possibly a person would have to be pretty undeniably and noticeably autistic in order to be labeled among the Amish. At any rate, Mr Olmstead appears to suspect that there are fewer Amish auties because they don't vaccinate.
This is where a distinct knowledge of practical genetics would come in handy.
See, the Amish are very genetically limited. In a word: inbred. This isn't an insult; it's a simple fact. The Amish gene pool is very small with very little new incoming blood, and families often stay rooted in one area for long periods of time. They can't outcross with the "English", or non-Amish. Most people who do not breed livestock don't realize that inbreeding isn't necessarily a negative thing. It all hinges on *what* genes you are concentrating. Basically, you just get more of what's already there in the genes. It doesn't magically make horrid deformities or mutations unless those genes were there to begin with. It DOES increase the odds that you will see more of what's really there(genotype), genetically (as opposed to phenotype, i.e., what you SEE). If you have a wonderful animal with a solid background, the easiest way to fix the genes and get consistent offspring is to linebreed or inbreed with a relative (of varying degrees).
When you inbreed------>> You will see some traits, even if they're not that common in the general population, at a higher concentration. With continued inbreeding/linebreeding, the population becomes more and more consistent with less genetic variation. Some traits which may be common in the general populace may not show up at all in the inbred population: if the genes weren't there to begin with, or were not there in sufficient numbers, they didn't get concentrated.
And that's what I think happened with the Amish. They have an excessively high rate of some birth defects and genetic diseases (one of the dangers of inbreeding, and you can't ethically "cull" humans the way you do with livestock). But it stands to reason that other traits (possibly including autism) simply wouldn't be there at all. This is what anyone would expect to see....not a big surprise. No conspiracy there!
_________________________________________________________
At this point, I suppose I should link to the relevant articles:
here's one and here....is another.
Ok, here's my spiel on the matter: Dan Olmstead desperately needs to research animal breeding (heck, plant breeding would work too) before he starts jumping to conclusions. It is true that the Amish live a relatively simple and less industrialized lifestyle than most of us (although we tend to romanticize and exaggerate this fact: the Amish actually do have washing machines in many cases....just not your standard on the grid machine). I'm sure that quite a few of them also don't go to doctors unless absolutely necessary. Their life is far less inundated with the sort of noise and chaos that drives an aspie to their wit's end. The schools are smaller and less overwhelming. Among these facts: The Amish generally don't vaccinate their children. This is one of many aspects of the Amish culture.
Apparently there are far less reported cases of autism in the Amish community. I suspect that the aspies function better there than they do in our modern day life and probably go undetected....if they are there. Possibly a person would have to be pretty undeniably and noticeably autistic in order to be labeled among the Amish. At any rate, Mr Olmstead appears to suspect that there are fewer Amish auties because they don't vaccinate.
This is where a distinct knowledge of practical genetics would come in handy.
See, the Amish are very genetically limited. In a word: inbred. This isn't an insult; it's a simple fact. The Amish gene pool is very small with very little new incoming blood, and families often stay rooted in one area for long periods of time. They can't outcross with the "English", or non-Amish. Most people who do not breed livestock don't realize that inbreeding isn't necessarily a negative thing. It all hinges on *what* genes you are concentrating. Basically, you just get more of what's already there in the genes. It doesn't magically make horrid deformities or mutations unless those genes were there to begin with. It DOES increase the odds that you will see more of what's really there(genotype), genetically (as opposed to phenotype, i.e., what you SEE). If you have a wonderful animal with a solid background, the easiest way to fix the genes and get consistent offspring is to linebreed or inbreed with a relative (of varying degrees).
When you inbreed------>> You will see some traits, even if they're not that common in the general population, at a higher concentration. With continued inbreeding/linebreeding, the population becomes more and more consistent with less genetic variation. Some traits which may be common in the general populace may not show up at all in the inbred population: if the genes weren't there to begin with, or were not there in sufficient numbers, they didn't get concentrated.
And that's what I think happened with the Amish. They have an excessively high rate of some birth defects and genetic diseases (one of the dangers of inbreeding, and you can't ethically "cull" humans the way you do with livestock). But it stands to reason that other traits (possibly including autism) simply wouldn't be there at all. This is what anyone would expect to see....not a big surprise. No conspiracy there!
Saturday, May 28, 2005
Victimhood: all too easy to fall into. You can spot a vicitm a mile away many times, because they tend to whine or moan a lot about their fate but frequently take very little action to change it.
Then there's martyrdom: martyrs expect you to see their suffering and to think highly of them for it. Suggesting that they should take steps to remedy their situation will be taken badly: who are you to rob them of their honor?!! Martyrs suffer in silence or stoicism, often when they don't really need to suffer at all.
Either way----> the problems don't get better, or if they do, the person finds something new to whine about and the success isn't mentioned. Solutions are not sought out, they are discounted.
I should know: I've definitely been a victim, especially in my younger years, when I felt powerless and that God would be displeased if I stood up for myself, that to do so would be selfish.
I think I'm pretty much over that, though: when I started work I realized, after several months, that if I didn't stand up for myself noone else would care, or listen. The work environment was just totally different...and while I'm not above whining occasionally, I'm more likely now to defend myself, to set things straight, to go to a boss if I need to, or to simply tell someone off if they need it.
I am tired of being a vicitm. I'm gonna pitch a fit and scream my bloody lungs off if anyone even attempts a tenth of what's already been doen to me, ever again.
Anyway, the question is this: does accepting and facing the challenges and joys of being autistic make me a victim? I don't think so. I am looking for solutions to life's adversities, for a niche in life, for ways in which I can succeed and fulfill at least some of my potential. That's not a victim.
Then there's martyrdom: martyrs expect you to see their suffering and to think highly of them for it. Suggesting that they should take steps to remedy their situation will be taken badly: who are you to rob them of their honor?!! Martyrs suffer in silence or stoicism, often when they don't really need to suffer at all.
Either way----> the problems don't get better, or if they do, the person finds something new to whine about and the success isn't mentioned. Solutions are not sought out, they are discounted.
I should know: I've definitely been a victim, especially in my younger years, when I felt powerless and that God would be displeased if I stood up for myself, that to do so would be selfish.
I think I'm pretty much over that, though: when I started work I realized, after several months, that if I didn't stand up for myself noone else would care, or listen. The work environment was just totally different...and while I'm not above whining occasionally, I'm more likely now to defend myself, to set things straight, to go to a boss if I need to, or to simply tell someone off if they need it.
I am tired of being a vicitm. I'm gonna pitch a fit and scream my bloody lungs off if anyone even attempts a tenth of what's already been doen to me, ever again.
Anyway, the question is this: does accepting and facing the challenges and joys of being autistic make me a victim? I don't think so. I am looking for solutions to life's adversities, for a niche in life, for ways in which I can succeed and fulfill at least some of my potential. That's not a victim.
Thursday, May 26, 2005
More than simple envy......
Why, when males are endowed with something as nice as a penis, don't they put it to better use than they do?
Violence: a penis is like, the world's best sex toy, and almost every guy has one. Why would they want to use it as a weapon?
Foreplay: Men have a distinct advantage here in that their very sexy male organ is on external display. It can bounce! It can wiggle! It gets hard! It does all kind of entertaining things. Do they take advantage of this fact by taunting us into a frenzy until we practically beg for them?? Not often. But they could. I mean, they could tease us all day long, off and on, until the girl feels like dragging him into the bedroom. But most don't. Instead, they're like, "Time for bed!" (meaningful look or gesture), it gets hard, and then they're like, "Wow, it's hard! I could stick this somewhere!" and that's about it. :-/ I'm not complaining TOO much, but guys, are you seriously that lacking in creativity?? Or in patience?
In the Bathroom: Frankly, if I had such a handy urethra that could aim as well as theirs does, that's what I'd do with it: aim. My anatomy precludes this, unless I want to start the arduous task of learning how to pee standing for females. Still, I manage not to get it all over the seat, floor and walls. I have told my sons, time and again, that if they cannot aim and lifting the seat is just too strenuous for them, they should sit. They do not. I'm just about to the pont of removing the seat entirely...except that I would rather sit on it than squat above the bowl! I hate having to wash it off before using each and every time.
Why, when males are endowed with something as nice as a penis, don't they put it to better use than they do?
Violence: a penis is like, the world's best sex toy, and almost every guy has one. Why would they want to use it as a weapon?
Foreplay: Men have a distinct advantage here in that their very sexy male organ is on external display. It can bounce! It can wiggle! It gets hard! It does all kind of entertaining things. Do they take advantage of this fact by taunting us into a frenzy until we practically beg for them?? Not often. But they could. I mean, they could tease us all day long, off and on, until the girl feels like dragging him into the bedroom. But most don't. Instead, they're like, "Time for bed!" (meaningful look or gesture), it gets hard, and then they're like, "Wow, it's hard! I could stick this somewhere!" and that's about it. :-/ I'm not complaining TOO much, but guys, are you seriously that lacking in creativity?? Or in patience?
In the Bathroom: Frankly, if I had such a handy urethra that could aim as well as theirs does, that's what I'd do with it: aim. My anatomy precludes this, unless I want to start the arduous task of learning how to pee standing for females. Still, I manage not to get it all over the seat, floor and walls. I have told my sons, time and again, that if they cannot aim and lifting the seat is just too strenuous for them, they should sit. They do not. I'm just about to the pont of removing the seat entirely...except that I would rather sit on it than squat above the bowl! I hate having to wash it off before using each and every time.
Friday, May 20, 2005
I still believe that love, whether or not it is returned or rejected, is never wasted.
So, for all the lonely souls in the world, who have loved in vain without return, let me say it again: love is its own reward. It doesn't have to be reciprocal to be genuine or worthwhile. Don't ever be ashamed of loving someone, whoever they are.
Love enriches the world, it opens our hearts, it causes us to see the good in life and to be the best people that we can be. It gives life strength and meaning and passion and drives us to acheive goals and surmount problems that would otherwise seem insurpassable.
The pain doesn't come from love. The pain comes from rejection and from the death of hope and yes, expectations. Don't ever be afraid to love or stingy about it.....just watch out for those expectations....the biggest reward has already been had.
So, for all the lonely souls in the world, who have loved in vain without return, let me say it again: love is its own reward. It doesn't have to be reciprocal to be genuine or worthwhile. Don't ever be ashamed of loving someone, whoever they are.
Love enriches the world, it opens our hearts, it causes us to see the good in life and to be the best people that we can be. It gives life strength and meaning and passion and drives us to acheive goals and surmount problems that would otherwise seem insurpassable.
The pain doesn't come from love. The pain comes from rejection and from the death of hope and yes, expectations. Don't ever be afraid to love or stingy about it.....just watch out for those expectations....the biggest reward has already been had.
Monday, May 16, 2005
I just got my second raise in about a month!!! I couldn't believe it! Wooohoo! The boss said, when I asked him why he did that, that he felt that people who work harder should get paid more even if they don't have as much seniority. I told him that I would work hard to deserve the raise (after thanking him profusely). I think I embarrassed him. :-P
I found something that helps my hips a little: to wear an insole in the leg that is shorter. When I wore insoles for both, they hurt like hell. Took the left one out, relief. I have not had SERIOUS pain since doing this.
I found something that helps my hips a little: to wear an insole in the leg that is shorter. When I wore insoles for both, they hurt like hell. Took the left one out, relief. I have not had SERIOUS pain since doing this.
Tuesday, May 10, 2005
Okay. I boiled water for chocolate malt-o-meal at least three times and had it all evaporate before I could add the cereal! Finally I used about half a pan's worth of water, let it boil, measured the boiling water, threw out the excess, and made the cereal. It is very hard to boil just a cup or two of water and have any of it left!
One of our nice neighbors gave us a whole bunch of oriental poppies that she was digging up, along with other plants. She did this on MOther's Day. And Tim had also bought me some stock starts and a strawberry plant (complete with green berries already fruiting), these, I am happy to say, were in pots. The poppies were more or less bareroot and not very happy about that. I planted them all ASAP and we watered the heck out of them. They recovered.
The medication, which cost $25, does not work! Lovely. I still alternate between that familiar burning sensation, times where they're only very faintly sore, and where the area feels numbed and I feel queasy and lightheaded and exhausted. It is, more or less, one of these three modes, almost all the time.
One of my legs is about 1/4" longer than the other, and this, incidentally, is also the leg with the foot that was turned inwards when I was a baby, the one I wore orthopedic shoes for. The left one. The same hip that hurts me. Hmmmm...... I forgot to mention to the doctor that my hips also dislocate during some activities...they haven't done so in a long time, but it hurts like hell when it occurs. The thing is, I wasn't in a LOT of pain when I went to see him. I'd had two days off work. And even with the hike, I was only mildly sore. So he'd ask, "does this hurt?" and I'd say..."Uhhh...yeah. I think so. Maybe." I have a high pain tolerance. I would have to be in agony in order to be able to tell him really well exactly what hurts and where, precisely. I would have to come in after working all day long.
---------------------------------------------------------------
We're considerign buyign the house of the assistant manager that I wouldn't speak to for a while. I'm still not sure how well I like her. OK as a person, maybe. I still don't want her to be my boss. It's a really neat home, an underground one. It's like a little hobbit house! Very unique! YOu would expect it to be dark, right? It is not. It has a big skylight. What it IS: very well insulated by all that earth, and it feels very holistic and nourishing. It has 5 acres and is all set up for g oats already!! It has woods! It has water, power, phone, internet, AND a generator setup for power outages. It needs more gardens, they haven't been kept up. Also, it has a lot of outbuildings, storage sheds, barns, woodsheds, etc etc. I want to get this place, but I can only get $50 K financed. The house needs some significant work done on it (which I can do) and no bank will loan on it, because it's an earth home. They won't take payments in any form, they have to be bought out. Today they're getting it appraised....and I'm betting that it will be in the 75-100K range. I wonder who they will sell it to? Soemone who will build another house and demolish that one? :-( I really want this place. It feels right.
One of our nice neighbors gave us a whole bunch of oriental poppies that she was digging up, along with other plants. She did this on MOther's Day. And Tim had also bought me some stock starts and a strawberry plant (complete with green berries already fruiting), these, I am happy to say, were in pots. The poppies were more or less bareroot and not very happy about that. I planted them all ASAP and we watered the heck out of them. They recovered.
The medication, which cost $25, does not work! Lovely. I still alternate between that familiar burning sensation, times where they're only very faintly sore, and where the area feels numbed and I feel queasy and lightheaded and exhausted. It is, more or less, one of these three modes, almost all the time.
One of my legs is about 1/4" longer than the other, and this, incidentally, is also the leg with the foot that was turned inwards when I was a baby, the one I wore orthopedic shoes for. The left one. The same hip that hurts me. Hmmmm...... I forgot to mention to the doctor that my hips also dislocate during some activities...they haven't done so in a long time, but it hurts like hell when it occurs. The thing is, I wasn't in a LOT of pain when I went to see him. I'd had two days off work. And even with the hike, I was only mildly sore. So he'd ask, "does this hurt?" and I'd say..."Uhhh...yeah. I think so. Maybe." I have a high pain tolerance. I would have to be in agony in order to be able to tell him really well exactly what hurts and where, precisely. I would have to come in after working all day long.
---------------------------------------------------------------
We're considerign buyign the house of the assistant manager that I wouldn't speak to for a while. I'm still not sure how well I like her. OK as a person, maybe. I still don't want her to be my boss. It's a really neat home, an underground one. It's like a little hobbit house! Very unique! YOu would expect it to be dark, right? It is not. It has a big skylight. What it IS: very well insulated by all that earth, and it feels very holistic and nourishing. It has 5 acres and is all set up for g oats already!! It has woods! It has water, power, phone, internet, AND a generator setup for power outages. It needs more gardens, they haven't been kept up. Also, it has a lot of outbuildings, storage sheds, barns, woodsheds, etc etc. I want to get this place, but I can only get $50 K financed. The house needs some significant work done on it (which I can do) and no bank will loan on it, because it's an earth home. They won't take payments in any form, they have to be bought out. Today they're getting it appraised....and I'm betting that it will be in the 75-100K range. I wonder who they will sell it to? Soemone who will build another house and demolish that one? :-( I really want this place. It feels right.
Wednesday, May 04, 2005
I want to cry. I woke up feeling this way and it just hasn't gotten any better. But I won't/can't, anymore than a desert can flood on command. I just feel desolate and barren. We went for a walk though, and saw a lot of pretty plants and great rocks and boulders. Boulders with moss, shooting stars...hmm...I can'y decide which I like better.
Anyway, I took some St John's wort and should be feeling better sometime today. Hopefully before I go to work. He's been so nice to me, it isn't his fault. I just get into a bad mood now and then.
So I went to the doctor about my hips. He asked me where and how they hurt, but they didn't hurt enough to be able to tell him as well as I'd have liked to, as well as I could have had I worked all day before going there. Unfortunately my work hours don't really allow for that, nor do his. He took X rays. Bones are so beautiful, so graceful. The bony pelvis reminds me of a butterfly. The xrays show that the bones are fine, just fine!!! I don't know how they can hurt this much...how?! It is so frustrating.... He syas that it's probably soft tissue; ligaments, tendons, and so forth, that have gotten strained. Try not to lift heavy things (yeah, right). And he gave me a prescription for an anti-imflammatory, but that's not good since the insurance company won't acknowledge that I've been paying them a sizable chunk out of my check every two weeks. They haven't sent me the card yet, and they deny that I'm on it.
The pharmacy says that it's "only" $25.00. Over the counter anti-imflammatories don't even touch this pain, I seriously cannot even tell that I took them! OTOH, do I want to work in pain and be this crabby and irritable because of it? Maybe I'm just a hypochondriac, as a number of people seem to imply. All I know is that there are times when this hurts so freaking much that I feel nauseous.
Anyway, I took some St John's wort and should be feeling better sometime today. Hopefully before I go to work. He's been so nice to me, it isn't his fault. I just get into a bad mood now and then.
So I went to the doctor about my hips. He asked me where and how they hurt, but they didn't hurt enough to be able to tell him as well as I'd have liked to, as well as I could have had I worked all day before going there. Unfortunately my work hours don't really allow for that, nor do his. He took X rays. Bones are so beautiful, so graceful. The bony pelvis reminds me of a butterfly. The xrays show that the bones are fine, just fine!!! I don't know how they can hurt this much...how?! It is so frustrating.... He syas that it's probably soft tissue; ligaments, tendons, and so forth, that have gotten strained. Try not to lift heavy things (yeah, right). And he gave me a prescription for an anti-imflammatory, but that's not good since the insurance company won't acknowledge that I've been paying them a sizable chunk out of my check every two weeks. They haven't sent me the card yet, and they deny that I'm on it.
The pharmacy says that it's "only" $25.00. Over the counter anti-imflammatories don't even touch this pain, I seriously cannot even tell that I took them! OTOH, do I want to work in pain and be this crabby and irritable because of it? Maybe I'm just a hypochondriac, as a number of people seem to imply. All I know is that there are times when this hurts so freaking much that I feel nauseous.
Sunday, May 01, 2005
When the goal is to turn an autistic person into a pale imitation of a neurotypical and to deny them any expression or manifestation or justification or legimacy of/for their autistic selves, isn't the true goal to squelch and suppress their self identity? This "therapy" leaves the autistic no place to turn inwards, where they can say, "this is me, this is good, I *like* me, this is who I am. Instead, it's all pretense and facade, something we're not all that good at, I think. One is left in unhappy introspection: is this me? Or it it what they wanted? I'm not happy with it. They liked it. I don't like this...they pick on me for it....it's bad because they don't like it...they say it's weird...Why do I have to pretend so hard...and who do I pretend to be?..." (I used to choose one model at a time, usually someone I admired and was fond of. If and when they rejected me, I then had to discard that persona and try to model after someone else.) I always had a slight nagging feeling about this...and what hurt the most was when the person encouraged me, actively assuming the role of role-model, and then abruptly abandoned or spurned me. I was unable to choose a generalized 'normal' mode, or to identify one. I *had* to imitate other people in order to act any semblance of normal.
Is this what you people want, to deny us our autistic self identity? To say that who we really and truly are deep inside, is wholly inadequate? We are supposed to live out an entire life this way?! And to be happier for it!!! My god, what have you been smoking? How could you even imagine that this would be successful or productive? (We won't even go into humane, auties apparently are too far gone to deserve humane treatment!)
A person's self-identity is the very germ and seed of their personality. To rob a person of this, and intentionally, yet, is a crime worse than rape. A body is only a shell, but without our real self, we would just as well be walking zombies acting to please the general populace. A person's selfhood is sacred, and noone: no parent, no teacher, no therapist, no expert, has the right to deprive anyone of that.
What better form of expressing one's inner self can there be but the arts?
You can ban me from your forums, you can shut me up, you can shout me down. You can fire me, threaten me, hurt me, and pretend I don't exist. You can tell me that since I'm autistic, my opinion doesn't count. You can claim that I'm not really autistic, the pschologist was dumb and I'm pretending and therefore I'm invalid. You can make up elaborate and bizarre theories to explain things away about me and why I'm so, in your opinion, fucked up. You can pray for me, plead with me, sigh over me, wring your hands, ply me with guilt trips, laugh at me, or swear at me. It doesn't matter.
I am tired of trying to be what I am not and I refuse to do it anymore. It's hard work to be what I am, but at least I know who I am. I am just as legitimate, being autistic, as you are, being neurotypical, and you aren't one iota better than me for it. You can't shut me up. I will paint, and even though I can't communicate well, my pictures will say it for me: this is me, this is who I am, this is the beauty that I see in the world around me, through my eyes!
Is this what you people want, to deny us our autistic self identity? To say that who we really and truly are deep inside, is wholly inadequate? We are supposed to live out an entire life this way?! And to be happier for it!!! My god, what have you been smoking? How could you even imagine that this would be successful or productive? (We won't even go into humane, auties apparently are too far gone to deserve humane treatment!)
A person's self-identity is the very germ and seed of their personality. To rob a person of this, and intentionally, yet, is a crime worse than rape. A body is only a shell, but without our real self, we would just as well be walking zombies acting to please the general populace. A person's selfhood is sacred, and noone: no parent, no teacher, no therapist, no expert, has the right to deprive anyone of that.
What better form of expressing one's inner self can there be but the arts?
You can ban me from your forums, you can shut me up, you can shout me down. You can fire me, threaten me, hurt me, and pretend I don't exist. You can tell me that since I'm autistic, my opinion doesn't count. You can claim that I'm not really autistic, the pschologist was dumb and I'm pretending and therefore I'm invalid. You can make up elaborate and bizarre theories to explain things away about me and why I'm so, in your opinion, fucked up. You can pray for me, plead with me, sigh over me, wring your hands, ply me with guilt trips, laugh at me, or swear at me. It doesn't matter.
I am tired of trying to be what I am not and I refuse to do it anymore. It's hard work to be what I am, but at least I know who I am. I am just as legitimate, being autistic, as you are, being neurotypical, and you aren't one iota better than me for it. You can't shut me up. I will paint, and even though I can't communicate well, my pictures will say it for me: this is me, this is who I am, this is the beauty that I see in the world around me, through my eyes!
Friday, April 29, 2005
A long desired wish....
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I've wanted a violin since I was 17 years old and a friend let me play out a tune or two on hers. I was enchanted with it, in love with the resonant tones. For years I would ask at thrift stores and pawn shops and pick up the thrifty nickel paper for used violins at a very affordable price. Whenever I found one, I didn't usually have the money. Once we saw one for only $20, and when I called the old man said he'd sold it already.
There is a girl who plays her violin in front of the grocery store regularly. I don't think she does it for pay, she does it because she likes to and maybe others will like to hear it. Maybe it's advertising. Her dad makes violins and buys other violins and refurbishes them. We got to talking one day at the store, and I confessed my long love affair with violins. Imagine my surprise to hear that I could get a newly improved model for as little as $100!!! Whee!!!!
My tax return came in today. I have my violin, at last. :-) And I'm a little afraid to play it, to shatter the veil of dreams and give birth to the reality. I will play it every day.
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I've wanted a violin since I was 17 years old and a friend let me play out a tune or two on hers. I was enchanted with it, in love with the resonant tones. For years I would ask at thrift stores and pawn shops and pick up the thrifty nickel paper for used violins at a very affordable price. Whenever I found one, I didn't usually have the money. Once we saw one for only $20, and when I called the old man said he'd sold it already.
There is a girl who plays her violin in front of the grocery store regularly. I don't think she does it for pay, she does it because she likes to and maybe others will like to hear it. Maybe it's advertising. Her dad makes violins and buys other violins and refurbishes them. We got to talking one day at the store, and I confessed my long love affair with violins. Imagine my surprise to hear that I could get a newly improved model for as little as $100!!! Whee!!!!
My tax return came in today. I have my violin, at last. :-) And I'm a little afraid to play it, to shatter the veil of dreams and give birth to the reality. I will play it every day.